Information to give to patients and relatives

Information Leaflets

Click on the picture to get an online copy:

Sickle Cell carrier information leaflet:                                      Sickle cell carrier: description in brief - GOV.UK (www.gov.uk)       

Haemoglobin E carrier information leaflet:                               Haemoglobin E carrier: description in brief - GOV.UK (www.gov.uk)

Haemoglobin Lepore carrier information leaflet:                       Your antenatal blood test result: you are a haemoglobin Lepore carrier - GOV.UK (www.gov.uk)

Haemoglobin C carrier information leaflet:                               Newborn screening: Your baby carries a gene for Haemoglobin C - GOV.UK (www.gov.uk)

Haemoglobin O^arab information leaflet:                                    Haemoglobin O Arab carrier: description in brief - GOV.UK (www.gov.uk)

Haemoglobin D carrier information leaflet:                               Newborn screening: Your baby carries a gene for Haemoglobin D - GOV.UK (www.gov.uk)

Delta Beta Thalassaemia information leaflet:                           Delta beta thalassaemia carrier: description in brief - GOV.UK (www.gov.uk)

Patient associations and information sources

Sickle Cell Society (www.sicklecellsociety.org)

UK Thalassaemia Society (www.ukts.org)

Scottish Paedriatic & Adult Haemoglobinopathy Managed Clinical Network (www.spah.scot.nhs.uk): offers useful information sources and support groups for parents and patients.

NHS Choice (http://www.nhs.uk/Conditions/Sickle-cell-anaemia/Pages/Introduction.aspx)

Accessible Publishing of Genetic Information (http://www.chime.ucl.ac.uk/aPoGI/data/html/hb/carriers/menu.htm)