Information to give to patients and relatives

Information Leaflets

Click on the picture to get an online copy:

Sickle Cell carrier information leaflet:                                             

Haemoglobin E carrier information leaflet:                                     

Haemoglobin Lepore carrier information leaflet:                       

Haemoglobin C carrier information leaflet:                                 

Haemoglobin O^arab information leaflet:                                    

Haemoglobin D carrier information leaflet:                                 

Delta Beta Thalassaemia information leaflet:                            

Parents of a baby who carries a gene for sickle cell:                   

Parents of a baby who carries a gene for unusual haemoglobin:  

Beta Thalassaemia carrier information leaflet:                            

Sickle cell and thalassaemia screening: information for fathers

Patient associations and information sources

Sickle Cell Society (www.sicklecellsociety.org)

UK Thalassaemia Society (www.ukts.org)

Scottish Paedriatic & Adult Haemoglobinopathy Managed Clinical Network (www.spah.scot.nhs.uk): offers useful information sources and support groups for parents and patients.

NHS Choice (http://www.nhs.uk/Conditions/Sickle-cell-anaemia/Pages/Introduction.aspx)

Accessible Publishing of Genetic Information (http://www.chime.ucl.ac.uk/aPoGI/data/html/hb/carriers/menu.htm)