Huntington’s disease (HD) is a complex neurological condition with symptoms that typically begin to develop between the ages of 30 and 50.
In around 5-10% of cases HD symptoms develop before the age of 20 - this is known as Juvenile Huntington’s disease.
HD is hereditary, meaning it impacts upon entire families over generations rather than on individuals alone. Each child of a person with HD has a 50% chance of inheriting the condition.
As HD progresses it can affect a person’s:
Symptoms generally progress slowly over a long period time. Those impacted may experience gradual loss of independence and require increasing care and support. Most people with the condition will eventually require 24 hour care.
A well coordinated multi-disciplinary approach to the care and support of people living with Huntington's disease is essential.
The Scottish Huntington’s Association has published a National Care Framework which outlines the care and support that HD families should be entitled to receive throughout the country.
The National Care Framework is funded and supported by the Scottish Government and backed by all parties in the Scottish Parliament. It was developed by a multi-disciplinary expert group and has been supported and endorsed by the National Advisory Committee for Neurological Conditions, NHS Boards, Health and Social Care Partnerships, professional bodies, HD family members, academics and national and international third sector partners.
The Framework seeks to ensure that the care and support provided to individuals and their families living with Huntington’s disease takes account of their specific health & social care needs throughout their experience.
The National Care Framework for HD can be viewed at care.hdscotland.org
HD Specialists (contact for all enquiries or to make a referral)
Sally Woolvine (Senior HD Specialist)
Gillian Blair (HD Specialist)
Helen Maginnis (HD Specialist)
Ann Waugh (HD Specialist)
Scottish Huntington's Association - Glasgow Services
Business First, Burnbrae Road, Paisley, PA1 2FV
0141 556 4100
[email protected]
HD Clinical Lead
Post currently vacant. Please direct all enquiries to the HD Specialist Team (above) in the first instance
Youth Service Lead
Kirsten Walker
0141 5562136
07983 724201
[email protected]
Financial Wellbeing Officer
Melissa Higgins
Financial Wellbeing Officer
07710 391621
[email protected]
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