Address:
159 Broad Street
Glasgow
G40 2QR
Glasgow
Glasgow City
Telephone: 0141 551 5050
Office space for some NHSGGC services.
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Huntington’s disease (HD) is a complex neurological condition with symptoms that typically begin to develop between the ages of 30 and 50.
In around 5-10% of cases HD symptoms develop before the age of 20 - this is known as Juvenile Huntington’s disease.
HD is hereditary, meaning it impacts upon entire families over generations rather than on individuals alone. Each child of a person with HD has a 50% chance of inheriting the condition.
As HD progresses it can affect a person’s:
Symptoms generally progress slowly over a long period time. Those impacted may experience gradual loss of independence and require increasing care and support. Most people with the condition will eventually require 24 hour care.
A well coordinated multi-disciplinary approach to the care and support of people living with Huntington's disease is essential.
The Scottish Huntington’s Association has published a National Care Framework which outlines the care and support that HD families should be entitled to receive throughout the country.
The National Care Framework is funded and supported by the Scottish Government and backed by all parties in the Scottish Parliament. It was developed by a multi-disciplinary expert group and has been supported and endorsed by the National Advisory Committee for Neurological Conditions, NHS Boards, Health and Social Care Partnerships, professional bodies, HD family members, academics and national and international third sector partners.
The Framework seeks to ensure that the care and support provided to individuals and their families living with Huntington’s disease takes account of their specific health & social care needs throughout their experience.
The National Care Framework for HD can be viewed at care.hdscotland.org
HD Specialists ( best first port of call)
Sally Woolvine (Senior HD Specialist)
Karen Nightingale (HD Specialist)
Claudia Lang (HD Specialist)
Gillian Blair (HD Specialist)
Unit 2A
David Dale Business Centre
159 Broad Street
Glasgow
G40 2QR
0141 556 4100 / 0141 556 2136
[email protected]
HD Clinical Lead
Dr Elizabeth Quinn
Consultant Psychiatrist
Leverndale Hospital
510 Crookston Road
Glasgow
G53 7TU
0141 556 4100
Senior Specialist Youth Advisor
Kirsten Walker
0141 5562136
07983 724201
[email protected]
Financial Wellbeing Officer
Melissa Higgins
Financial Wellbeing Officer
07710 391621
[email protected]
Offer recovery based support to those living with severe and enduring mental health conditions. Trainees are given the opportunity to take part in various vocational training activities.