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Available Datasets

Below is a list of the datasets available for linking; please use this page of the website when filling in your application. All of our datasets are currently for residents within the boundaries of NHS Greater Glasgow & Clyde only.

We operate a system whereby we class datasets by ‘Tiers’:

  • Tier 1 datasets are those which are generically/nationally collected datasets used in everyday health care (such as SCI Store and SMR). These are available to all approved projects where needed.

 

  • Tier 2 datasets are generated locally/regionally by services which start data collections to help advance their services and benefit their patients. We will endeavour to include the data representative/controller in any application approvals which request access to this data. We do this;
  1. Firstly as recognition to the service of the work which generates the dataset;
  2. Secondly because applications may conflict or may want to collaborate with research projects planned or ongoing by the service which generated the data and;
  3. Thirdly in recognition of the local knowledge of the data collected and its appropriateness to the project applications.

 

  • Tier 3 datasets are generated by research projects conducted within NHSGGC or derived datasets created by combining data from several sources.

We provide Data Packages page for each dataset listed. Scroll down here to view the available datasets under their appropriate tiered structure. Some datasets have links to metadata files for more information on what is available:

Tier 1 Datasets:

Dataset ID   Description

7                 SCI Store (Laboratory tests)

9                 Prescribing (cashed at local pharmacies)                              

12               SMR00 (Outpatients - general)

13               SMR01 (Inpatients - general)

14               SMR02 (Inpatients - maternity)

15               SMR04 (Inpatients - mental health)

17               NRS General Registers Office (Births & Deaths)

35               SCI Diabetes (Diabetes Registry)

64               SBR (Scottish Birth Record)

68               SMR11 (Archived Neonatal Records)  

72               SMR06 (Cancer Registry)

 

Tier 2 Datasets:

Dataset ID   Description

1                 PsyCIS (Psychosis Clinical Information System)

2                 Weight Management Service (WM service records)

3                 Athena (Heart Failure service records)

4                 Rheumatology (Rheumatology service records)

5                 Parkinson's Disease (Specific Neurodegenerative conditions service records)

10               Clozapine Cohort (Local specific cohort dataset)

11               GP Local Enhanced Services (data for eight specific long term conditions)

16               Stratified Medicine (Onco-pathology research dataset)

18               EDIS (Emergency Department Information System - North Glasgow only)

20               Lung Cancer Dataset (Local specific cohort dataset)

21               MINAP Data (Myocardial Ischaemia National Audit Project - NHSGGC only)

22               Cordia Visits (Glasgow City Council home carer visits)

24               TrakCare A&E

25               SERPR (Renal service records)

26               Spirometry (Spirometry studies for GGC patients)

27               Pain Management Database (Pain Management service records)

28               Bariatric Surgery (additional Weight Management service data)

45               SHARE Cohort (used for screening purposes - click link for more info)

49               GISMO (Orthopaedics service records)

50               CFPP (Community Falls service records)

52               Substance Abuse Infants (Infants born to substance abusing mothers in PRMH)

54               Cordia Pendant Alarms (Glasgow City Council-issued pendant alarms dataset)

55               TrakCare Appointments & Clinics (General clinic records)

56               Cancer Screening Dataset for Bowel, Breast & Cervical Cancers

58               Homecare Patient Registration (additional prescribing data)

62               PNBS (Pregnancy booking & newborn screening data)

65               Barrett's Oesophagus Registry (NHSGGC wide)

66               CORE-net (Anxiety & Depression Questionnaires data)

67               Health and Wellbeing Survey 2014/2015 (In-home survey on perception of health)

69               30-Month SDQ (Strengths and Difficulties Questionnaire for children at 30 months)

70               OPERA (Elective & emergency operations)

73               Renal Cancer TMA (Laboratory-collected clear cell renal cancer tissue array dataset)

74               Chemocare (Chemotherapy prescribing records)

97               ARIA (Radiotherapy treatment records) 

98               Ascribe (Cancer trial prescribing/dispensing records)

101             Defecating Proctograms (Acute cohort 2009-2016)

103             PACS (Anonymised Radiological images)

104             CRISP (First Episode Psychosis cohort of patients)

110             RACPS (Rapid Access Chest Pain Service database)

114             Statutory Homelessness Service database (Glasgow city)

131             Prostate TMA (specific cohort tissue array dataset from Glasgow Royal Infirmary)

132             Colon TMA (GGC tissue array dataset for colon cancer)

133             Breast Cancer TMA (GGC tissue array dataset for ER+ve and ER-ve breast cancer)

134             Prostate Cancer TMA (Hormone Naive and Castrate Resistant Prostate Cancer))

Tier 3 Datasets

Please discuss with the Safe Haven before requesting any of the below datasets:

Dataset ID   Description

113             Charlson Matrix (combines data from other sources and produces Charlson score)

120             BMI Matrix (combines data from other sources to give wider BMI data)

121             Dementia Matrix (Virtual GGC cohort with differential diagnoses)

123             FIB4-4 Score Matrix (Liver fibrosis virtual cohort matrix, including FIB4 score)

126             Smoking Matrix (Smoking data from various sources)

135             APRI Matrix (APRI Scoring matrix for detection of cirrhosis and predicting fibrosis)

136             HOMA-IR Matrix (Homeostatic Model Assessment for Insulin Resistance)

137             NAFLD Matrix (Non-Alcoholic Fatty Liver Disease (NAFLD) Fibrosis Score)

138             Ethnicity Matrix (Cleaned Ethnicity data from various sources)