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Specialised network helps kids across Scotland

September 03, 2012 10:51 AM

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A specialised national network for treating paediatric renal and urology patients is enabling hundreds of young Scottish patients to receive specialist treatments in their local hospitals instead of travelling to the national centre in Glasgow for their care.

Such has been the impact of the National Managed Clinical Network (MCN) for Scottish Paediatric Renal and Urology which is hosted by NHS Greater Glasgow and Clyde from its base at Yorkhill that colleagues from Nottingham and Bristol have recently sought advice from the Royal Hospital for Sick Children, Glasgow, on setting up and delivering a managed clinical network service.   

Consultant paediatric nephrologist at the RHSC in Glasgow and network clinical lead Dr David Hughes explained:  “The MCN is about delivering care in a joined up way.  It’s about national networking to ensure that patients across Scotland are able to access the best care possible regardless of where they live.  Our aim is to ensure that any young people experiencing complex renal or urological conditions have the best outcomes. 

“Here at the Royal Hospital for Sick Children in Glasgow, we have the only paediatric renal inpatient unit for Scotland.  Through the Network, we are able to provide that specialised knowledge and care across the country without the patient always having to come to Glasgow.  One of the main aims of the MCN is ensure that all patients with chronic renal and urological illness receive a co-ordinated and integrated care plan that takes into account the educational, psychological, emotional and social needs of the patient and their family as well as the treatment of their renal or urological condition.  The network aims to deliver care close to home with information and intervention being provided, as necessary, by the specialist unit working closely with the local team, including the link paediatrician, a paediatric nurse specialist and paediatric dietitian.” 

The MCN means that shared care clinics in general hospitals across Scotland can now deliver the specialised services of the renal team at Glasgow’s Royal Hospital for Sick Children (RHSC) along with the children’s urology teams of in Aberdeen, Edinburgh and Glasgow. The network has brought together a number of renal and urological specialists to help children and young people all over Scotland deal with kidney and bladder disorders.

The Scottish Paediatric Renal and Urology Network is funded by NHS National Services Division (NSD) and helps those up to aged 16 who may require specialist intervention to be managed locally and therefore minimising the disruption to their home, family and school life. 
 “A key element is working with local multidisciplinary teams to ensure that the same standard of care is available to all our patients wherever they are treated.   In Scotland, we really are setting the standard in delivering this model of service and meeting the recommendations of a Royal College of Paediatrics and Child Health report which aims to  improve the standard of care of children with kidney disease through paediatric renal networks,” explained Dr Hughes.

One patient who has benefited from the joined up service is nine year old Kacey Edmison from Galashiels who has managed to maintain her school and home life with her family while being treated through the network.

Kacey’s mum, Julie McLaughlin, explained:  “It was very worrying when Kacey first became ill and she was taken into to Glasgow, it was difficult trying to be there with her while looking after the rest of the family at home.

“Once the doctors had established what Kacey needed, through the clinical network, she was able to be at home, go to school and it felt like she really was making progress.”

Through the MCN, Kacey has been treated in Borders General Hospital and is followed up locally in the joint renal clinic with input from the renal team in Glasgow working with the local paediatric team. 

Notes to editors

An audit of general nephrology clinics noted that 40% of outpatient episodes at Glasgow’s Royal Hospital for Sick Children Yorkhill involved patients from out of area. The Managed Clinical Network allows many of these patients to be seen locally in joint clinics with visiting specialist and local multi-disciplinary support.

For more information contact the press office, tel: 0141 201 4429 or email:  [email protected]

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Last Updated: 06 February 2015