Treating

There's no cure for Prader-Willi syndrome (PWS), but a team of different healthcare professionals will help you manage any problems your child has due to the syndrome

Managing Prader-Willi Syndrome: A Guide for Parents 

There's no cure for Prader-Willi syndrome (PWS), but a team of different healthcare professionals will help you manage any problems your child has due to the syndrome, such as overeating, and treat any associated conditions.

A care plan will be drawn up to address your child's problems and needs. The plan will be continually reassessed as your child gets older and their needs change.

You and your child will also be given a key worker who will be your point of contact for the various support services available. While your child is young, it's likely the key worker will be a health visitor. As your child gets older and their needs become more complex, it's likely the key worker will be a social worker.

Most adults with Prader-Willi syndrome are unable to live fully independent lives, such as having a full-time job and living in their own home. Their behavioural issues and problems with food mean these environments and situations are too demanding. Adults with the syndrome who don't live with their parents will probably require residential care.

A Typical Treatment Plan for Prader-Willi Syndrome