Finding Help

Resources and websites that will help inform you about Facioscapulohumeral Muscular Dystrophy

Contact a Family Support Groups

Contact a Family is a national charity for families with disabled children.

They provide information, advice and support. They bring families together so they can support each other. They campaign to improve their circumstances, and for their right to be included and equal in society.

ALISS (A Local Information System for Scotland)

ALISS (A Local Information System for Scotland) is a search and collaboration tool for Health and Wellbeing resources in Scotland. It helps signpost people to useful community support, and with an ALISS account you can contribute the many and varied resources that our local communities have to offer.

Local Resources for Facioscapulohumeral Muscular Dystrophy